November 21, 2023
Executive Summaries

Overview of the goals and value of CCSC

August 13, 2024
e-Newsletters / News & Events

Latest CCSC e-News Update August 2024

August 12, 2024
Posters

HTCs can download this poster to share an overview of CCSC benefits at community or chapter events. The poster is print-ready and sized as a retractable banner.

August 12, 2024
Fact Sheets

Download this fact sheet to learn more about the benefits of CCSC participation for HTCs.

August 12, 2024
Fact Sheets

Download this HTC quick guide to alternative funding and copay-centered payer/purchaser initiatives.

August 12, 2024
Fact Sheets

Payers download this overview of the value of Hemophilia Treatment Centers to improve care and outcomes.

July 18, 2024
News & Events

July 11, 2024
Journal Articles

Soucie JM, et al. Mortality among males with hemophilia: relations with source of medical care. Blood. 2000;96:437-442.

Soucie JM, Symons J 4th, Evatt B, et al. Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia. Haemophilia. 2001;7(2):198-206.

Okolo AL, Soucie JM, Grosse SD, et al. Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources. Haemophilia. 2019;25(3):456-462.

May 17, 2024
News & Events

May 17, 2024
News & Events

May 17, 2024
Infographics

Infographic highlighting the value of HTCs and collaborations through CCSC

May 17, 2024
Infographics

Customizable infographic highlighting the optimal outcomes at the lowest total cost of care in hemophilia using the Triple Aim Approach.

View the instructions to customize

March 8, 2024
Fact Sheets

NEW resource on Von Willebrand Disease (VWD) for payers. Check out this quick primer to better understand the prevalence and impact of VWD on patients and the healthcare system.

January 22, 2024
Executive Summaries

Check out the latest CCSC News Update featuring a review of the 2023 updates and activities and see what to expect in 2024.

January 16, 2024
Tool Kits

A resource for payers to assure optimal outcomes are achieved at the lowest total cost of care

January 10, 2024
Fact Sheets

CCSC overview for lived experience experts and community members

January 10, 2024
Fact Sheets

Overview of CCSC and the importance of HTCs for State Stakeholders

January 10, 2024
Fact Sheets

Fact sheet highlighting why providers should participate in CCSC

January 10, 2024
Fact Sheets

Fact sheet highlighting why payers should participate in CCSC

January 10, 2024
e-Newsletters

Collaborating for Patient Access and Optimal Outcomes: Key Takeaways from the CCSC Symposium at the 75th Annual Bleeding Disorders Conference

January 10, 2024
e-Newsletters

Archived CCSC e-newsletter on managing costs and outcomes among

January 10, 2024
e-Newsletters

Archived CCSC e-newsletter on the impact of COVID-19 on the bleeding disorders community

January 10, 2024
e-Newsletters

Archived CCSC e-newsletter with program updates from June 2021

January 2, 2024
Archived EVENTS / Videos

Archive from a live webcast highlighting the unintended consequences of copay accumulator adjustment programs in rare diseases

January 2, 2024
Archived EVENTS / Videos

Archive from a live webcast providing an overview of CCSC and the value of HTCs

January 2, 2024
Archived EVENTS / Videos

Archive from a live webcast in partnership with the Midwest Business Group on Health

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