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National Bleeding Disorders Foundation

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Key References

Soucie JM, et al. Mortality among males with hemophilia: relations with source of medical care. Blood. 2000;96:437-442.

Soucie JM, Symons J 4th, Evatt B, et al. Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia. Haemophilia. 2001;7(2):198-206.

Okolo AL, Soucie JM, Grosse SD, et al. Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources. Haemophilia. 2019;25(3):456-462.

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CCSC is supported by charitable donations from founding supporter Takeda, and additional support from Biotechnology Innovation Organization (BIO), Genentech, Inc., Gulf States Hemophilia and Thrombophilia Center, Hemophilia Alliance, Louisiana Center for Bleeding and Clotting Disorders, Mary M. Gooley Hemophilia Center, Sanofi, and Western New York BloodCare.

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